15th Annual Virtual Reece’s Roundup
Saturday August 15th
We’re going virtual this year!
Run anywhere and on your own time
Supporting Reece Rubino in his fight against Spinal Muscular Atrophy
RUN FOR REECE
Join us for the 15th Annual Virtual Reece’s Roundup. It is because of our community, friends, sponsors, and supporters who have been on this journey with us that Reece is surviving and thriving despite his condition.
Reece Rubino was born in 2005. At 3 months old, he was diagnosed with Type 1 Spinal Muscular Atrophy. Jeff and Lesa Rubino researched every possible detail of this disease and what was out there in the medical field that had the most research in this area and would benefit Reece and his condition.
Reece is 14 years old and entering into the 9th grade. (Reece with his dad, mom, sister and brother)
From the beginning this motor neuron condition affected his ability to move, swallow and even breathe. But Reece received his loading dose of Spinraza, a new FDA approved drug that offers hope for children with SMA. Reece is slightly moving muscles he NEVER moved before: his ankles and biceps! This is a very promising drug.
On a daily basis we use the services of Home Health Nurses, PT therapists, OT therapists and speech therapists. Most of the time we don’t receive half of the support we need. He is line of sight care. We purchase life-saving medical equipment and supplies. While insurances cover some of it, there is still much it does not cover.
Your participation in Reece’s Roundup helps give us the means to give Reece what he needs to survive. We are so grateful for your help. Because of you – and faith – all things are possible!
How Does A Virtual Race Work?
1. Join the RUN to Change Lives Facebook Group and give a shout-out to Reece!
2. Invite a friend to sign up.
3. Watch for announcements regarding t-shirt pickup via Facebook and email.
4. Lace up on Saturday August 15th and run your race and post selfies and other encouraging photos to the Facebook group and tag us #Reece’sRoundup
5. Record your self-timed results on August 15th back here on this page.
ADVANCE PACKET PICK-UP
We will announce a safe packet pickup with time and date TBD.
SPECIAL THANK YOU TO OUR GOLD SPONSOR
BECOME A SPONSOR FOR REECE
Donation of $500-$999
Silver level sponsorship yields advertising your company logo or name on the thank you letter to all participants, and your company logo on the Reece’s RoundUp race day t-shirts, and participation in the race for FOUR representatives from your company.
Donation of $1000 or more
Gold level sponsorship yields advertising your company logo or name on the thank you letter to all participants, your company logo on the Reece’s RoundUp race day t-shirts, participation in the race for SIX representatives from your company, and a representative from your company may post a video in the Facebook group for the RoundUp
